This past week was another busy week for the G-man and the Gibbs family. Several weeks ago we searched out a local chapter of the Spina Bifida Association here in Grand Rapids and on Monday we had the opportunity to meet with the group. Not really knowing what to expect we headed downtown to the Mary Freebed Hospital and after a few wrong turns made our way into a conference room. WE honestly had no idea what it would be about or how many people would attend, but we thought we'd give it a shot. What we discovered was what seemed like a once healthy and flourishing support group, that today seemed burned-out and in need of some help. The information we got was at times helpful but at other times not relevant to us at this time. The members all had boys with SB age 15-22, so although it was nice to hear that these boy are doing well today, we have a long way to go to get to some of the issue they are dealing with. I feel the idea of a "support group" has changed dramatically, especially with our generation. For one, this blog acts as a great support group for Leigh and I. Leigh also is involved in a wonderful online support group consisting of mainly new moms with SB children. So after the meeting we had mixed feelings about it, but feel its to early to bail on it at this point. Perhaps the group needs to be shaked up a bit and maybe we can help with that :)
Greyson also had his 2 month check up on Friday and he's doing great!
The G-man now weighs 12lbs 7oz and is 23 3/4 inches long. He's growing right on track. Greyson also needed his 2-month shots and as strange as it sounds we were hoping the little guy would scream his lungs out when those shots went into his legs!! Something I think only a parent with an SB baby would understand. Although Grey didn't cry when he got his shots his little leg shot up so fast! Which means he has some feeling in his legs! His hips also appeared to bother him the rest of the afternoon, especially when we pressed on the sore spot. I know, doesn't that seem horrible, pressing down on your child's shot "wound" and then smiling when we reacts to it. Again, I think any SB parent could relate.
So our boy keeps getting bigger and cuter everyday, we give thanks for him and how happy and content he is. We pray everyday that his shunt continues to work properly and continues to get stronger.
love to all,
the Gibbs'
6 comments:
So nice to hear he's right on track. He's certainly right on track for adorable! And hilariously understandable about feeling almost joyful at his discomfort. Completely one of those experiences I am glad to hear about so that I don't feel like such a monster when I'm in the same position. :) Congrats on every good report and every special moment. I'm so thankful for you and your little baby. 5 more weeks and we get to meet ours. I can't wait to introduce you. And I'm so glad I'll have friends like you guys when I need advice and comfort. :)
Hi! I am another mom from the SB board on BBC and I love your blog! I have to say that I definitely agree about wanting them to feel something with shots, etc., but feeling bad at the same time. Although Oliver can feel shots in his thigh, he never feels a heel stick or anything in his feet. He recently had tendon release surgery in his feet, and did not need any pain medication. Bitter sweet. But we were just at the orthopaedist today, and I mentioned that. He told me that the nerves that control feeling and those that control movement are at different points in the spine. so even if he doesn't have one, that doesn't necessarily mean he won't have the other.
i blog, too. i'm about a year and a half ahead of you, it might be a useful form of social support that is relevant to where you are. feel free to check it out: http://lisa-lovinourlife.blogspot.com/
Best!
Lisa
I hear you about the shot situation!
I can't remember if I have commented on your blog or not, but I peak in on you guys once in a while. Your son is darling and I am just cheering you on, remembering 5 years ago when we were in your shoes. Each year gets easier and even more wonderful!
I am interested in the online support group that you are happy with. Would you mind emailing me which one that is.
Thanks so much!
whoops. Forgot to add my email.
sawaksmith@hotmail.com
Aw, that little caterpillar measure thing is so cute!!
Is it even possible for him to get any cuter? Love the update. I know how the shot thing goes. I'm always like "scream, scream god dammit!" :) It's awful - wishing pain upon your little ones. (sorry about the cursing!)
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