Sunday, March 20, 2011

The Children's Museum

This week, my mom and I took Grey and two of his cousins to the Grand Rapid's Children's Museum He LOVED it! He has been borrowing a wheelchair from his PT and he had the best time zooming around! He also had on his KAFOs so if there was something that he could stand at...he did!! Here are just a few pictures from our day!

Here he is enjoying the giant lite brite!

He is learning his we heard "ti-angle" for the next 20 minutes!

Here he is standing at the bubble table and the sand table...such a big boy!!

What a cutie!!

I hope you all are enjoying your spring!! We are off to Florida next week and can't wait for some warm weather!!

Much love from the Gibbs'!!

Sunday, March 13, 2011

A picture worth a thousand words...

To those not living in the SB world, this picture may not mean much. To me, this picture means more than I can say.

The scar (which you can barely see)
The standing
The undies

I knew there would be a scar, I hoped that there would be standing, and I had no idea if he would ever wear undies.

I know that his bladder can change anytime, so right now, we are so thankful about this huge milestone.

He's basically Superman. :)

Saturday, March 12, 2011


Happy Birthday to the best Daddy around!!

We Love You!!!

Leigh and Grey

Wednesday, March 9, 2011

Grey's new gear...

Today, Grey got his very first pair of KAFOs (knee ankle foot orthoses). These are braces that go above his knee and can be locked so that the knee has complete support when standing. I spent many nights worrying and debating weather or not we should stick with his GRAFOS (ground-reaction ankle foot orthoses) or take the leap and go with KAFOs. So far I am THRILLED with our decision! Grey's quads are extremely weak and it is nearly impossible for him to stand for any length of time without some sort of support for his knees, and trying to walk...forget about it. His knees would just buckle. We have been using knee immobilizers for months and for standing and walking they have been working pretty well, although they were getting much too small and we knew we didn't have much time left with them.

Grey with his knee immobilizers on

So, I went in to talk with Gabe...the most amazing orthotics guy around and he showed me something that I didn't even know existed. It's a KAFO that can turn back into a GRAFO...amazing.

See how it attaches near the ankle? Awesome.

At that point, it was a no-brainer. We knew that these were the braces for Grey! Before I show you what his new braces look like, I thought that we could take a stroll down memory lane and reminisce a little about his past AFOs...

Can you even handle this picture? I can't.

Grey got his first teensy tiny pair when he was just 3 months old. He had a curve to his foot, that if left untreated...would just get "curvier" so we strapped these bad boys on for about 20-22 hours a day and voila! his feet were (and still are) straight and beautiful!

I'm not sure what's cuter...the tiny AFOs or those chubby little legs!
Next came a pair that he only wore at night. This pair was to help with his plantar flexion (basically they pointed his foot down).

Here we are putting them on

and here he is just being cute. :)

Next he got his "standing AFOs" this was the first pair to help with standing.

Who is this kid?

snacks are always a good motivator
He also figured out how to take this pair off

His next pair were GRAFOS....they give a bit more support at the knee, you can tell in these pictures that there is an insert that goes above his knee in the front.

Next, it was time for the casting of his new is Gabe doing what he does best...

Grey's just keeping himself busy with the IPOD

And there you have it!!

How did we get from so little fast???

Grey at therapy...standing so tall!

Grey with his brand spakin' new KAFOs!!

Wednesday, March 2, 2011