Sunday, September 13, 2009

Big Day Tomorrow...


Tomorrow, Grey is having his first MRI. I know that he will breeze through the day like a champ, but Andy and I...not so much. :) Grey's neurosurgeon just wants to get a baseline MRI while Grey is happy, meaning when his shunt is working and he is showing no symptoms of something being wrong. This will be a full brain and spine MRI and will last approximately 2.5-3 hours. Because of the length of the test, Grey will need to go under general anesthesia. One of our major concerns is Grey's shunt. His shunt is programmable by a magnet, so as you can understand, the idea of Grey being surrounded by a HUGE magnet for 3 hours is not something we are looking forward to. His shunt will be programed back to to right setting as soon as the test is done, but we just worry what the change in pressure for 3 hours could do. So if you could just keep little Grey (and his mom and dad) in your prayers tomorrow we would be very grateful. We won't have the results of the MRI until Friday, but we will update once we get them. As far as the results go, Dr. Foody is looking specifically at the severity of tethered cord, Arnold Chiari malformation, and any possibly syrinxs. (I wouldn't recommend googling ANY of these things as Google has a unique way of scaring the pants off of anyone looking up info on any sort of ailment.) But really all these things are actually quite common in kids with SB.) :) Grey is doing GREAT so even if something pops up, we won't let ourselves get too concerned. Thank you to all who continue to go on this journey with us, we love you all!

Leigh, Andy, Grey.

Saturday, September 5, 2009

It's Official...

HE'S MOBILE!!!!!!! :) We are SO proud of our Grey and couldn't wait to share it with all of you! He started scooting on Thurs. and today (Saturday) he is just going all over the place! YAY Grey!! :)

video


Oh...AND he has his first two teeth!! Grey has been very busy this week! :)




Love to all,
Leigh, Andy and Grey

Thursday, September 3, 2009

Back to "School"

I'll always remember that feeling i would get around mid-to-late August every year. The Back-to-school ads would pop up more and more and I would become heartbroken...because summer was coming to an end, and school was around the corner. I remember the first time post-school, when i had graduated and somehow found a job soon after and that summer turned to fall... I had to convince myself that "hey wait, im done with school, no more of this, I can enjoy this time of year" And that's what I've been doing every since.

So wait where was I going with this...Oh yeah, School. Thankfully I'm done and there's been several occasions I've turned to Leigh and have mentioned how glad I am to be out of school. haha (sorry to rub it in for those still studying, keep up the hard work :) hehehe. Anyway, what i was getting at is that our little Grey starts his version of School next week. After having the summer "off" (not really, Leigh pushes him hard during the day) Grey will resume his Physical therapy. Tuesdays he'll be at the conductive Learning Center, Wednesdays he'll start a new class for babies, Fridays PT comes to the house. And Leigh just informed me that she will be signing Grey up for a swimming class!!! Wow, this kids gonna be busy! But this busy is a "good busy." We've already have seen results of working hard with him. It's truly amazing to see Grey hit these milestones as any other "typical" baby would. We're just really proud of him!!!

Remember how I said I've been enjoying the fall...we'll here's a few pictures of us doing just that!




Grey just being cute.



Love you Mommy!


Kisses for mommy.


Love you daddy


"Here Dad, let me fix your hair"


love you all,

Andy, Leigh, Grey

Monday, August 24, 2009

Our Vacation...



Grey is on his first summer vacation! This past Friday we came up north to Mitchell lake (or Lake Mitchell, we're not quite sure) with my family to get some much needed R and R. We have been having a great time and Grey has been enjoying many firsts...

His first ride on (and steering of) a paddle boat...


His first time tubing (with mommy holding on VERY tightly!)


His first time on a water slide (he LOVED it!)


His first time being SO exhausted at the end of the day that he can't even make it to his bath and pjs before falling asleep!

Overall, we are having a great time and Grey is loving the water as much as his daddy! We Just LOVE experiencing all of these "first" with Grey and hope that he is having as much fun as we are! We hope that you all are enjoying your summer as much as we are!


Love to you all,
Leigh, Andy, and Grey

Wednesday, August 12, 2009

Six Months...

Then:



Now:



Today our Grey is SIX MONTHS OLD!! I can't even believe it. It feels like just yesterday we were bringing him home from the hospital after 12 long days in the NICU. Days filled with uncertainty and worry. We had so many questions before he was born...Would he need a shunt? Would there be many shunt revisions? Would we have to start cathing right away? Would we be able to come up with a bladder/bowel program so he could be like all of his friends? And the ever pressing...Will he walk? We certainly don't have all of those answers, but what we do have is an amazing son, who is smiling, laughing, rolling, sitting, and a faithful God who has shown Himself to us over and over and over again in these past 6 months. We have faith that whatever challenges come up, we will get through. I no longer fear the future, but look forward to it. I can't wait to hear him say "mama" for the first time, to get a hug, and to hear his first joke. These past 6 months have been nothing short of amazing and I can't wait to see what else God has in store for us!

Friday, August 7, 2009

some new pictures...

As you all know...we are a bit crazy (but in a good way) about our Grey and LOVE to take his picture. Here are a few from last weekend. I also wanted to say a big thanks to everyone who has sent us emails, called, and left comments about Grey's latest trick (rolling over), it is so amazing to us, that there are so many of you out there cheering him on and loving him as much as we do! Thank You!!

OK, so he may be a bit small for the swing, but we're pretty sure that he liked it!

Grey LOVES to fly!

Totally pretending to sleep. It was too sunny for him!

Grey and his Daddy

Grey and his Mommy

What a goof!
The best $6 that I have ever spent!
video

Wednesday, August 5, 2009

Keep rollin...

over that is! Greyson's been working really hard at trying to roll over from his back to his tummy (He's been rollin tummy to back for quite a while now) lately and yesterday the G_man did it!!! and get this...Leigh happened to be rolling the camera! So we got it, he's on film. From what I understand we can upload video to the blog so here goes! and keep your eyes on how happy Grey was when he finally did it. enjoy!

video


In addition to the progress hes making at home, rollin over and such, we also got some encouraging news at his orthopedics appointment today! After looking over Grey's hip X-ray the doctor determined that at this point his hips are in joint and his feet are looking good. In fact he only needs to wear his AFO's at night. She was also pleased with his hip movement and how he was straightening his legs from time to time. I cant even explain how much joy we get when Leigh and I see the slightest movement of his legs and this past week we have seen him moving them much more! Now we aren't gonna sign him up for the long jump event just yet... :) but even this seemingly small step is so huge to Leigh and I. We are so proud of our boy!

We've kinda been slacking on our posting, but we promise to try harder :)

love Andy, Leigh and Grey.