Tomorrow, Grey is having his first MRI. I know that he will breeze through the day like a champ, but Andy and I...not so much. :) Grey's neurosurgeon just wants to get a baseline MRI while Grey is happy, meaning when his shunt is working and he is showing no symptoms of something being wrong. This will be a full brain and spine MRI and will last approximately 2.5-3 hours. Because of the length of the test, Grey will need to go under general anesthesia. One of our major concerns is Grey's shunt. His shunt is programmable by a magnet, so as you can understand, the idea of Grey being surrounded by a HUGE magnet for 3 hours is not something we are looking forward to. His shunt will be programed back to to right setting as soon as the test is done, but we just worry what the change in pressure for 3 hours could do. So if you could just keep little Grey (and his mom and dad) in your prayers tomorrow we would be very grateful. We won't have the results of the MRI until Friday, but we will update once we get them. As far as the results go, Dr. Foody is looking specifically at the severity of tethered cord, Arnold Chiari malformation, and any possibly syrinxs. (I wouldn't recommend googling ANY of these things as Google has a unique way of scaring the pants off of anyone looking up info on any sort of ailment.) But really all these things are actually quite common in kids with SB.) :) Grey is doing GREAT so even if something pops up, we won't let ourselves get too concerned. Thank you to all who continue to go on this journey with us, we love you all!
Leigh, Andy, Grey.
5 comments:
Good luck tomorrow, I am sure everything will go great. We will keep you in our prayers.
Praying for you guys!!
You're in our prayers today. good luck and keep us posted.
Praying that all went well today for all 3 of you.
I know things in our little world are much more "exciting" than we'd like sometimes. With all these extras we sometimes think "what must it be like to just have NORMAL checkups and that's it?!" But our babies are without a doubt born with the special gift of handling it beautifully and making us love them even more. :) Grey is such an amazing little boy and you guys are all doing so so great. :) We love you guys! Your in our thoughts and prayers. Let us know how everything went. :)
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