Andy and I had the opportunity to go to this years National spina bifida conference. We went with our friends
Nate and Emily and although we had to leave our boys behind, we managed to have a great time! While there I was able to meet the first
mom that I spoke to after finding out about Grey's SB. What a pleasure it was to meet her face to face. Seeing her son Nate run around was even more amazing than I thought it would be. I was also able to meet another
mom who has answered many of my questions over the past year and a half, and a sweet
baby girl and her parents who makes me smile every time I see her sweet face. Putting real life faces to these names that I know so well, was such a great feeling. Having a child with SB is an automatic entry into this club that I'm not always thrilled to be in. However, this club is full of amazing families and kids who I cheer for everyday. Seeing
Jet stand up,
Annabelle moving right along,
Katie do a jog-a-thon,
Nellie take steps with her walker,
Alex scoot forward,
Brenden with his new walker,
Roman working out on the lite gait, seriously the list could go on and on...these kids are such an inspiration, and their families lift me up when I need it. Their moms (sorry dads, but the moms stick together) can answer my questions and calm my fears, but above all...THEY GET IT!! They cheer right along with me when Grey reaches a milsestone that at one point felt unreachable. But...back to the conference...
This conference was full of families like ours! I have never seen so many wheelchairs, walkers, crutches, AFOs in my life! It was GREAT!! The conference lasted Monday-Wednesday and was FULL of valuable information. I won't lie, there were times where we were on SB overload but for the most part, we learned so much and had a great time! I'm really looking forward to next year...ANAHEIM, CA...we're hoping that we can make it...WITH Grey this time!
I hope that you are all enjoying this wonderful holiday weekend!!
Love to all,
Leigh, Andy, and the G-man himself
Couldn't leave you without a picture!
Here is Grey working on standing! He is now able to stand leaning onto something for about 10 seconds!! WOO HOO!!
11 comments:
Great post! Love all the links and thank you for mentioning us :-) We love you too and can't wait to meet face to face in 2 weeks!! whoo hoo!!
So glad the conference was good and that you got to meet so many people. I CAN NOT wait until next year and can't even believe that it's going to be here - so stinking cool!
I love the new picture of Grey standing. He is doing awesome and is so handsome.
Have a Happy and Safe 4th!
Nicole
I have been thinking lately about what an amazing support system I have in all of you! I so wish I could have been there with you all at the conference-but I was there in spirit. Way to go Grey! Keep up the good work!
Thank you for sharing about the conference. I didn't even know there was such a thing!
Not sure if you remember me, but you left a comment on my blog weeks ago, and I've been meaning to contact you. I am pregnant with our third baby girl, and she does in fact have Spina Bifida. She isn't due until later this month, but I know once she arrives, I will have lots of questions and will take you up on your email offer!
Until then, we are continuing to pray and trusting in God's plan of what is to come. Thanks again for reaching out!
So glad you guys had a good time!!! And Go GREY with the standing. soooo fabulous!!!! Wish we could have attended the conference too, seeing members of my on line "family" would be amazing!!! But for now I'll live for posts and pics :)
Holli
So great to see him STANDING!!!! Yay for Grey!!! We will be at conference next year!!
Hey Leigh,
I'm so excited to hear about all the great information that you learned at the conference and I can't wait for our playdate. I think it may be have to be postponed:( because of our evaluation. Hope you guys are having a great 4th of July and love seeing the updated pictures of Greyson! Yay for standing at the furniture!!!
Kelly
So glad to hear that the conference was so awesome! Anaheim eh? That is so much closer to Phoenix, so we may be able to get there next year! Yay!
Go Grey! Love the standing! Tanner is working on the same things!
Awesome on the standing!!
So great to meet you!
Love this pic!!! It makes my heart just swell with pride, and it comforts my "mom, working on that heart" Thank you.
First off, GO GREY! Nice standing kid. He's doing so well. I was just showing my mom your blog and bragging about how stinking cute Grey is and how awesome he is doing.
I also loved this post. You are so good at putting your thoughts into words. This SB family of ours is truly amazing. I agree 100%, sometimes it's a club you wish you weren't in, but all the people in the club are wonderful, supportive and gifts from above.
Hope to make next years conference.
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