Andy and I had the opportunity to go to this years National spina bifida conference. We went with our friends Nate and Emily and although we had to leave our boys behind, we managed to have a great time! While there I was able to meet the first mom that I spoke to after finding out about Grey's SB. What a pleasure it was to meet her face to face. Seeing her son Nate run around was even more amazing than I thought it would be. I was also able to meet another mom who has answered many of my questions over the past year and a half, and a sweet baby girl and her parents who makes me smile every time I see her sweet face. Putting real life faces to these names that I know so well, was such a great feeling. Having a child with SB is an automatic entry into this club that I'm not always thrilled to be in. However, this club is full of amazing families and kids who I cheer for everyday. Seeing Jet stand up, Annabelle moving right along, Katie do a jog-a-thon, Nellie take steps with her walker, Alex scoot forward, Brenden with his new walker, Roman working out on the lite gait, seriously the list could go on and on...these kids are such an inspiration, and their families lift me up when I need it. Their moms (sorry dads, but the moms stick together) can answer my questions and calm my fears, but above all...THEY GET IT!! They cheer right along with me when Grey reaches a milsestone that at one point felt unreachable. But...back to the conference...
This conference was full of families like ours! I have never seen so many wheelchairs, walkers, crutches, AFOs in my life! It was GREAT!! The conference lasted Monday-Wednesday and was FULL of valuable information. I won't lie, there were times where we were on SB overload but for the most part, we learned so much and had a great time! I'm really looking forward to next year...ANAHEIM, CA...we're hoping that we can make it...WITH Grey this time!
I hope that you are all enjoying this wonderful holiday weekend!!
Love to all,
Leigh, Andy, and the G-man himself
Couldn't leave you without a picture!
Here is Grey working on standing! He is now able to stand leaning onto something for about 10 seconds!! WOO HOO!!