So we went for an ultrasound on Wed. and got the best news of our lives...WE'RE HAVING A SON!!! Followed somewhat quickly with the worst news of our lives...out little boy has spina bifida. Even writing it now it is somewhat hard to believe. So many questions that have no answers. The one thing that we do know is that THIS is our son. The baby that God intended for us to have. No matter what obsticles come up, we will love him always. We saw a maternal fetal medicine specialist this morning and learned a little more about what exactly it is that our little guy has. He has an opening in his spine at the L2 vertebrae. I still don't even know how to say that. This means that the nerves are growing on the outside of his spine and will need to be surgically put back into place within 24 hours of being born. He will most likely be able to walk with the aide of tall leg braces and crutches but may choose to use a wheelchair, I hear that little boys like to go fast! :) His feet and legs are straight which is a great sign. He has excess fluid on the brain, which all babies of spina bifida have, and may or may not need a shunt put in once his is born. As for now, that is all we know. We will be meeting with a pediatric neurosurgeon next Friday to find out exactly what will happen once he is born and to find out what other physical limitations he may have. We know that together, with God, our families, and our friends we WILL get through this. We are still so excited to be having a little baby boy and cannot wait to meet him and hold him in our arms.
7 comments:
Congrats again on your baby boy!!!
We are here to support you guys in any way that we can. We love you!
~M&M
This little guy is so blessed to have parents like you. As you are so blessed to have this little guy as yours. We love you guys and will be with you the whole way. Your faith in God is so amazing and you will be blessed for it. Brian
I'm sure you feel it's all surreal now. You will learn and grow and receive so many blessings beyond what you can imagine. You truly are blessed...it's hard to see that with all of the things they will tell you. Be firm with the doctors and make sure they speak so you understand exactly what is happening. Keeping a journal of details, what is said and what procedure is done, etc. will help you keep the information clear. It's a good reference when so much is happening at once. Keep leaning on Him, deecy smith.
U are going to be the best Mommy and Daddy that any baby could ever ever hope for!!!!
congrats on the boy news. i always heard first born boys are incredibly special.
you both have an army of friends and family who will be there for you and the little gibblet every step of the way. we too can't wait to meet him and anticipate asking him life's most important question... "Whose your tiger?"
-chad
Hey guys, congratulations on your baby boy!
I'm sure it's a lot to take in for you both. But you two will be awesome parents. If you need anything - please ask. Andy I'll refill your coffee cup on Monday - hope that can be a good start.
Miken
Congrats on the new baby boy! I'm from the sb list. I also have a little boy with sb who just turned three. :) I so remember finding out with all the emotions that went with it. I look forward to getting to 'know' you and following your blog. :)
Post a Comment