Wednesday, August 5, 2009

Keep rollin...

over that is! Greyson's been working really hard at trying to roll over from his back to his tummy (He's been rollin tummy to back for quite a while now) lately and yesterday the G_man did it!!! and get this...Leigh happened to be rolling the camera! So we got it, he's on film. From what I understand we can upload video to the blog so here goes! and keep your eyes on how happy Grey was when he finally did it. enjoy!

video


In addition to the progress hes making at home, rollin over and such, we also got some encouraging news at his orthopedics appointment today! After looking over Grey's hip X-ray the doctor determined that at this point his hips are in joint and his feet are looking good. In fact he only needs to wear his AFO's at night. She was also pleased with his hip movement and how he was straightening his legs from time to time. I cant even explain how much joy we get when Leigh and I see the slightest movement of his legs and this past week we have seen him moving them much more! Now we aren't gonna sign him up for the long jump event just yet... :) but even this seemingly small step is so huge to Leigh and I. We are so proud of our boy!

We've kinda been slacking on our posting, but we promise to try harder :)

love Andy, Leigh and Grey.

Tuesday, July 21, 2009

We're Back!!


Ok, technically, we didn't actually go anywhere, we've just been a bit busy doing who knows what and haven't had time to post. Not too much has been going on around here. Grey had a check up with his neuro last week and all is well!!! Grey and his shunt are doing fantastic! WOO HOO!! Dr. Foody did mention that he wants Grey to have a baseline MRI done before his next visit (Sept.) just so we can see how everything looks while Grey is "happy". I totally understand why he wants this, but the mom in me is a bit nervous. First of all they will have to sedate Grey for the MRI...no fun! Secondly, there are many things that could "pop-up" on an MRI. Dr. Foody will be looking for any signs of a tethered cord (something that can be common in kids with SB, the scar tissue around their lesion site can build up causing the spinal cord to become tethered, or pulled down), syrinxs (fluid buildup in the spine, kind of like hydrocephalus of the spine), and he will also be looking at the extent of Greyson's arnold chiari malformation (this is the cerebellum being pulled down a bit and what caused Grey's hydrocephalus...the whole reason that he needs his shunt). Like I said, Grey is doing great and shows no signs of any of these things, but I'm his mom so of course I worry. Andy and I just continue to pray that our little guy stays just as strong and healthy as he has been, and that nothing new will "pop up".
Grey has started back up with his therapy at the Conductive Learning Center, he had 4 weeks off for summer and now he is back at it! We have been working on sitting (he's getting VERY good), kneeling, and gettting in and out of the sitting position. We are so blessed to live close to such an amazing place for Grey's therapy.
We also had a family reunion a few weeks ago and were lucky to get a 5 generation picture taken! Grey got to meet many of his relatives for the first time. I think that most of them probably felt as if they already knew him just from reading this blog! (Hi everyone!!!)

It's been an amazing summer so far...we're looking forward to the second half!!!
Please continue to keep little Grey in your prayers and we will continue keeping you updated! :)

Sunday, July 12, 2009

Lazy Sunday Afternoon

So it appears as if summer has truly arrived here in Michigan and with nicer, warmer weather we've been getting outside a lot. I thought I'd quickly post some photos from this weekends "photo shoot" at Riverside park in Grand Rapids. Oh and by the way Grey's 5 months old already!!! ahhhhhh! it can't be true !
But he continues to do well, so we give thanks everyday for his good health. He has an appointment this Friday with the neurosurgeon to check his shunt/head measurement etc. We pray that these types of appointments will become fewer and farther between with how well Grey's been doing!! Please pray that this is the case.
so here ya go, a few pics from the weekend.








Tuesday, June 30, 2009

My First Father's Day.

First off, look at the banner image... Does anyone remember the first time i took a picture of the G-Man on that chair... he was just a little squirt and had to rest his head on the armrest, not anymore! He's getting so big!!!

So its been a week or so since Father's day and haven't had a chance to share, so here goes.

That week, Leigh got Grey his first set of paints and paint brushes, However, the paintbrushes were not really used. Apparently Grey prefers to express his visual inspirations thru that of finger painting! and thats just what he did. He painted me two amazing paintings, paintings I will frame and keep for my entire life. These are by far more valuable than any other piece of art or design I own!!!

Here's a couple pictures of him working on this intense design solution!




And here's the final Masterpiece!




I still can't believe Leigh let him get all "dirty" with paint. I guess she knew I'd really like it! :) She was right. So after Grey gave me his paintings, we played for a while.



Later that day the family took uncle Jake's boat out and Grey had his first "swim" with daddy. I'm not sure what he thought about it, I still think he was a little self-conscious about the dorky life-jacket mommy made him wear. I think i heard him say something like, "Come on mom, this thing has a dorky turtle on it and my name's not Kent, why does it say Kent on here?"
Anyway, since his maiden voyage we've discovered he is a big fan of the water and even likes being dunked!



So after a busy Father's Day what else is there to do then to take a nap!



My First Father's Day was amazing and look forward to so many more!

love,

Andy

Monday, June 22, 2009

Appointment Update...



Greyson had a VERY busy week last week and I thought that it was time to update all of you on how his appointments have been going. First, he had his 4 month check up with the pediatrician (we still can't even believe that he is 4.5 months!!!) All went well there, he is weighing in at 15lbs 10oz. and is 26 inches long...50% for his age in both...we'll take it! :) He also had a head ultrasound and a check up with his neurosurgeon to check on his shunt, we are VERY happy to report that his shunt is working just as it should be! I have to say that whenever anything is just a bit different with the G-man my first fear is always that shunt! If he doesn't eat as much as he usually does, or sleeps a little longer, or cries just a little bit more than normal, I immediately feel his soft spot just to make sure that it feels ok, I don't know what I'm going to do when that soft spot closes! I guess that is something that will always be in the back of our minds. Anyway, back to the appointments...:) While we were at the SB clinic to see the neurosurgeon we also saw one of the other doctors there, he says that Greyson is doing GREAT!! He was very impressed with his head and trunk control (all of that tummy time is paying off!) Speaking of tummy time, Greyson is not a huge fan of it and has started rolling from his tummy to his back! He has been doing this for awhile now, but it is becoming much more of a regular thing! I think he sees how happy I get whenever I see him do this, and he knows that it is the best way to get out of that tummy time! We have been working on rolling from his back to his tummy, but he's not quite as good at that yet. We also had a kidney and bladder ultrasound and an appointment with the urologist. All is well in that department as well! His kidneys are growing as they should and not too small or enlarged and everything is still looking healthy! I'm always a bit nervous for these appointments knowing that cathing will most likely be in our future at some point, but the longer we can put it off the better! :)

Well, I think that it is for our appointments. Like I said, it was a very busy week, but one filled with good news! :) Greyson just continues to do so well and we are amazed by him every day! If we only knew what life would be like with him, we could have saved ourselves A LOT of worrying in those months after we found out about the spina bifida. Life is so good. :)

Wednesday, June 17, 2009

Trip Up North

So this past weekend Grey made his first real "road trip". We all packed up and headed north with some friends to Boyne City. We weren't quite sure how the G-man would do, but figured when he fell asleep after traveling a full city block, we thought we might be in the clear for the full duration of the trip. Although when Leigh told him he had to ride in the backseat for over 3 hours this is how he looked at us. :)



As to say, "seriously..., you want me to ride in my car seat for how long?" hahaha He was a champ though, made it all the way to Boyne city and the minute the car stopped, he woke up and was ready to go!! (eat that is) :)
Anyway, the entire weekend was incredible, great weather, great friends, great place to stay (thanks tom and jess!) great food, just a really nice time to relax and get away. Grey seemed to have a good time as well. And guess what, he pretty much stole the show. Even when I ventured out on the water to rip it up wakeboarding...sure enough he was on the dock gettin all the attention. I mean, come on, I nearly pulled off a 360...look at me!!! hehe :)

so here's a few pics from the weekend.





This last photo just shows off our amazing parenting skills...when the little dude has to spit up, just hold him over the dock. :) haha.

Here's one more photo just cause i love his shirt and love my son!!!!

Sunday, June 7, 2009

Motherly Instinct?




I guess it's that time again...time to update the banner image and showcase just how big Greyson's getting! Admittedly, we kinda set up the shot and kinda put his hands in his pockets. It was hard to resist!

I just wanted to share a quick story about Leigh and "Motherly Instinct". First off there is no doubt that Leigh possesses this thing that many refer to as motherly instinct. I knew that from day one. And truthfully, I'm very thankful for this type of "radar" moms seem to have, becasue I can guarantee there will be plenty of times when I'm clueless about some parenting issue and Leigh will swoop in and just know what to do. It's good to have that on your side. :) I've seen it come into play many times already in the first 4 months and am amazed. Here's the thing though, This weekend Leigh tried to use this "motherly Instinct" on something far from parenting. Let me explain:
Leigh, Grey and I are in the car going somewhere, I can't remember where, but as we often do when we see a car that we like, we typical say something like.
"ohh that'd be a nice car to have someday"
Well I just so happen to say this and made reference to some sort of Pontiac driving by us. Leigh almost disgustedly glanced at me and was like,
"Uahhh, are you serious? I don't like Pontiac's"

I kinda chuckled to myself and was looking forward to hearing her reasoning, of which I knew she had no "real" reason not to like a Pontiac. So I ask Why?
She responds saying,

"I can't really explain...(she pauses) it's just my Motherly Instinct"

Ohhhhhhh OK, that makes sense. Let's just say I'll ask Leigh to leave her Motherly Instinct at home when we do any future car shopping. HAHAHA


Other than that things are good with Grey! In about a week he'll return for a head ultra sound and another visit to the SB clinic. He's a very happy boy and we're getting pretty good at making him laugh!

love to all,

Andy, Leigh, and Greyson :)